SIDEfxHUB
Launched in 2024, SIDEfxHUB provides a safe and trusted space for sufferers of PFS and Post-SSRI Sexual Dysfunction (PSSD), along with their loved ones. Among the services offered by this UK-based patient organization is an ever-expanding network of moderated WhatsApp Peer Support Groups, where patients can freely—yet politely and respectfully—discuss anything and everything related to their condition, in hopes of advancing recovery. At present, such groups are operational in the following regions: UK, US & Canada, and Scandinavia. Additionally, SIDEfxHUB is building an online registry of patients worldwide who would like to be considered for participation in clinical research pertinent to the particular symptoms of their condition.
#MeTooPropecia
PFS patients and family members who wish to share their experiences about the impact the condition has had on their lives are welcome to do so via #MeTooPropecia, a Twitter page edited by PFS patient Michael Adams of Connecticut. You can contact him at #MeTooPropecia or metoopropecia@protonmail.com.